A family sank into mourning, as she lost her 10 -month -old baby who died of a rare genetic disorder called ligamental bullshit, also known as Jeb. Toofab wrote that the tragic news is about little Elliana Rose, who fought with the particular condition, with which she was diagnosed with her birth. “No child should leave like that …” Let’s fight for a treatment so that no other children will suffer, “said Hannah Campbell’s mother. According to doctors, ligamental phrase epidermolysis has a frequency of 2.7 cases per 1,000,000 births. It is the result of specific abnormalities in proteins that help to hook the skin layers and is hereditary. Symptoms include respiratory complications, nail and hair abnormalities, as well as bubbles and erosions on skin and mouth. So far, there is no treatment, so patients are managed by patients, that is, supportive care, which includes trauma care, management of the despair and the […]
Source: News Beast
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