For years it has been relegated to “painful periods”. Underestimating it, treating it superficially, often ignoring it completely. Yet theendometriosis it is a very widespread disease that accompanies the lives of many women, forced to face difficulties in pain management and very abundant and sudden flows.
We talk about endometriosis when the endometrial tissue, which is normally found inside the uterus, develops outside it (in the abdomen, ovaries, etc.
). There are several theories as to why this happens, but none can explain why the cells are located outside the uterus. The most corroborated explanation is the teoria at Sampson (also called retrograde menstruation theory), according to which, during menstruation, some of the cells would go in the opposite direction, that is, they would not exit the vagina, but would go towards the tubes until they reach the ovary, abdomen or other organs.
He suffers from endometriosis one in ten women; it is often painful and complex to diagnose. After years of painful menstruation and disabling disorders, Giulia Sorrentino, 25, recently discovered that she is one of the 10 percent of the female population who suffer from it. On March 20 he decided to speak at the II ° Convention of the Italian Endometriosis Foundation to tell his experience and tell everyone that: “I would like to become a spokesperson for this pathology, without being ashamed of anything. I want to transform the pain that pervades my body into the voice of all those who like me suffer from endometriosis».
Giulia’s story begins a couple of years ago. “Whenever the time for my period approached, I had severe pain and chronic fatigue: during the day I found myself always sleeping, even three hours straight. Cystitis was recurrent and also discomfort during sexual intercourse. At first all this was interpreted as “trivial menstrual pain”, which many women tend to self-diagnose, thinking that it is natural and that we must learn to endure. But it is precisely this wrong attitude that is one of the reasons why they never discover that they have this disorder and that they can somehow alleviate their suffering. Suffering during your period is not a normal thing: it is the signal the body gives us to say that something is not working».
«At first, I was told that these pains depended on the presence of a polycystic ovary»Continues Giulia. “Throughout the most critical period of Covid, however, it was not possible to book gynecological visits and there were times when I could not get out of bed, vomited from the severe pain and once even fainted. When I finally managed to go to my gynecologist the ultrasound showed an anomaly. I then underwent an MRI scan, to check for the presence of hemorrhagic cysts inside the body, And so, a few weeks ago, the verdict came. In addition to having several outbreaks of endometriosis, my case is also particular: I am an allergic subject and there are drugs that I cannot take».
Currently popular treatments for endometriosis include drugs such as contraceptive pills, the Levonorgestrel Intrauterine System (IUS) and specific progestogens. The use of surgery is reserved exclusively for specific cases. In fact, however, there is no more suitable therapy than others because the choice can also depend very much on the needs of a woman.
«I follow a therapy that involves taking a drug (Visanne, ed) to be taken, along with various supplements and vitamin D, from the first day of my period. It is based on an active ingredient (the progestin hormone dienogest, ed) which has been considered one of the most effective in cases of endometriosis. The question on which I would like to raise public awareness regarding the considerable costs that those suffering from endometriosis have to bear, even if it is not in full-blown acute phase, the only one for which the exemption is foreseen, since the possible therapy to alleviate pain, fatigue and general malaise mainly involves the use of products in Class C and therefore not loanable». In practice: those who suffer from endometriosis, a truly disabling disease, can only alleviate their suffering if they are able to spend a considerable amount monthly. And the speech also includes the purchase of sanitary pads: “due to the very abundant flow I am forced to use three sanitary pads a night for 5 days a month!».
«I realized that there are many women who suffer from it but they do not talk about it and do not let themselves be checked. Out of shame, embarrassment, guilt. And because there is still too little talk of endometriosis»Continues Giulia. “When I decided to publicly reverberate it on my Instagram profile, many women and even many men wrote to me to ask me what endometriosis was! Precisely for this reason then I think it is important to talk about it, because many women do not share the disease and related disorders with their partner. If you think that this disease has the highest incidence especially between the ages of 25 and 35, it is clear that it becomes disabling for those who want to study, find a job, have a peaceful relationship with their partner, want to have a child».
Living with endometriosis can be very complicated, whether it is the asymptomatic or the painful form. Symptoms are far from specific, and there are many cases of women suffering in silence, because without any precise diagnosis. Some experience mild symptoms, others more severe with repercussions on fertility. Most women find out late, when the possibility of having a child may also be compromised.
All this is talked about a lot in March, the month of endometriosis, but it is very little, given the difficulty of offering definitive solutions to those who suffer from it. “It is not enough to dedicate a month to the subject», Giulia reiterates. “We need to talk, inform, constantly raise awareness on this issue. Because women like me do not suffer from endometriosis only in March, but for 12 months of the year».

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