Last Friday we officially inaugurated the Collection of signatures in Umbria for the “free immediately” bill, to guarantee certain times and clear response methods to those who fall within the parameters for medically assisted suicide. An important law, which does not create new rights because in this case it would take Parliament, and which is perfectly respectful of territorial autonomies because it involves local institutions, region and ASL in the first place. Marco Cappato was with us, together with other activists of the Luca Coscioni association. The parliamentarian Walter Verini, the mayor of Perugia Vittoria Ferdinandi were with us. All the journalists were with us, they were with us so many people, a lot of moved or even in tears (like me), But above all, there was Stefano next to me.
Stefano who is next to me in every moment
Stefano has always told me he will be with me until the end. Stefano every day takes care of my security, my assistance, my well -being, my slightest escape of autonomy. With this last mobilization, Stefano is as if he would familiarize himself with the idea of ​​getting lost, because we are talking about ending life and somehow of mine too. I believe that activism helps him to elaborate this reality, this horizon. But in addition to this, from a tragedy that hit me firsthand and we as a couple and family, he draws lifeblood to react with cold blood and great organizational spirit angrily.
In fact, Stefano coordinates together with other activist friends of the signatures collection banquets of the whole province of Perugia. It is Stefano who collects adhesions, to mount the gazebo, to see how the weather goes, to think of new events where to convey activists and volunteers, and moves everything with the organizational spirit that has done of him a splendid director and video producer, one who must think of a thousand thousand things simultaneously without losing calm or concentration. It is Stefano that at the table at dinner he talks about our battle, as once, with an excellent Lapsus, he spoke of “our illness”. They tell me activists friends, you were lucky to find it, and I smile because I have been knowing for over twenty years. We had both our limits and we set ourselves both so much. But the lucky person I think it was me.
On the question of the end of life it is next to me without forcing
When I have no assistance it is Stefano who helps me even in my biological functions, to take care of me in everything. It acts as a filter with family and friends when they are too fatigued even just to respond to the phone. Take working appointments seeing the coverage of assistance first. He takes commitments or work trips hearing my assistants first. He performs work interviews with private carers with me and shows everyone the functioning of my body. I catheter me. I mechanically empty the intestine when I have to. He raises me, puts me in bed. On holidays, when the disability by miracle goes on vacation, it is he who washed me and take a shower and more. He does not know, because he cannot know, rest or illness. But now it’s truly another step. I am close to me on the question of the end of life without intruding and only by saying, when you have decided, you have only to tell me and I will organize myself accordingly.
Putting its understandable, and absolutely legitimate, emotionality. Which goes to book any hotels in Switzerland to accompany me to the courts for my legal battle, to move with me in the squares and in front of the cameras. The latter initiative is life for both of us, it concerns us firsthand but not only because we move for the rights of all the people in Umbria, It is getting back on the net with friends and activists of years, it is a pleasure and a rediscovery of all the human capital that we have seen growing over the years. But still I cannot deny that in the background my personal reality, my suffering. And Stefano, as always, as always has been in his life even before he knows me, with his family, with his affections, never fails.
I really took my life but it also gave me some great fortune.
Other stories of Vanity Fair that may interest you:
– I Stefano and Multiple Sclerosis: my appeal to Giorgia Meloni
- I Stefano and the multiple chosen, a beauty of beauty
- I Stefano and Multiple Sclerosis: a signature for us and for you
– I Stefano and the multiple sclerosis: the hour of air
–I, Stefano and Multiple Sclerosis: we are also more
-I, Stefano and multiple sclerosis: violated intimacy
-I, Stefano and Multiple Sclerosis: the contagion
-I, Stefano and multiple sclerosis: it was so feeling free …
Photo Courtesy of Guido Harari
Source: Vanity Fair
I’m Susan Karen, a professional writer and editor at World Stock Market. I specialize in Entertainment news, writing stories that keep readers informed on all the latest developments in the industry. With over five years of experience in creating engaging content and copywriting for various media outlets, I have grown to become an invaluable asset to any team.
