Reunion of mother and son who spent 16 days in a coma goes viral; see the moment

Nutritionist Tayane Granda, mother of 8-year-old Guilherme, shared on her TikTok account the moment of reunion with her son, after 16 days in which the boy was in a coma in a hospital in Barra da Tijuca, west zone from Rio de Janeiro.

“Mommy”, shouts Guilherme when he sees Tatyane enter the room. The published video already exceeds 97 million views. The meeting provoked emotional reactions from network users.

“Our people, how exciting. Impossible not to cry together”, “I’m in tears… I don’t even have words” and “The most beautiful video I’ve seen these days”, are some of the comments that can still be seen.

@tayanegandra

♬ original sound – Tayane Gandra

The boy was diagnosed with a rare genetic disease, the epidermolysis bullosa. The condition, detected from birth, causes the formation of blisters on the skin, which causes serious injuries and makes it more sensitive and thin.

According to information from the Ministry of Health, in Brazil, four out of every 1 million children are born with the pathology.

The repercussion of the reunion was so great that the players Figueiredo It is Gabriel Pec of Vasco da Gama – the team that the little one supports, went to the hospital to visit him. Furthermore, Rodrigo Dynamite son of Roberto Dynamite, former striker and idol of Vasco da Gama, was also presented to the young fan.

@tayanegandra

♬ original sound – Tayane Gandra

@tayanegandra

♬ original sound – Tayane Gandra

@tayanegandra

♬ original sound – Tayane Gandra

Butterfly wing

A CNN dermatologist Jonas Bueno explained that it is a disease that mainly affects the moist surfaces of the body.

“EBD is a rare genetic disease that affects the skin and mucous membranes. People with EBD have a lack or dysfunction of a protein called collagen type 7, which helps bind the top and bottom layers of the skin together. Due to this dysfunction, the skin becomes fragile and prone to painful blisters and sores, even with the slightest trauma.”

“Imagine if the simple act of hugging a loved one or wearing a new pair of shoes could cause painful blisters and sores. Unfortunately, this is a reality for people with EBD,” she explained.

The expert also comments that the simple and resistant barrier that normally constitutes our skin, for carriers, is as fragile as a butterfly’s wing.

“During my two decades of experience as a dermatologist, I have had the opportunity to work with many patients with EBD. Her strength and resilience despite the challenges are a true inspiration,” she explains.

The impacts of the disease act profoundly on the patient’s quality of life. In addition to the painful sores and blisters that can occur anywhere on the body, including the inside of the mouth and esophagus, EBD can cause a host of other problems, such as difficulty eating and speaking, malnutrition, stunted growth and, in some cases, cases, an increased risk of developing skin cancer.

Currently, there is no cure for EBD. Treatment focuses on controlling symptoms, preventing secondary infections, and improving the patient’s quality of life. This may involve special dressings to protect the skin, painkillers to control pain, physical therapy to maintain mobility and, in some cases, surgery to release joints that have become immobilized because of scarring.

According to the doctor, research on EBD is ongoing. Gene therapy, which involves correcting the defective gene, is a promising area of ​​study. The goal is that more effective treatments or even a cure for this condition can be discovered.