The woman with the rare condition and the unacceptable comments she receives online – ‘I’m beautiful for my family’

Lauren Behanna is 27 years old and wants to send her own message about rarity condition which bothers her and this despite the unacceptable comments she receives online about her appearance. The woman lives in West Virginia, USA, with her husband and their 7-year-old daughter creator. Both are constantly reminding her how beautiful she is…

Behanna was born with congenital myasthenic syndrome, which she describes as “a muscle weakness condition similar to multiple sclerosis – but the weakness doesn’t happen gradually”. As a baby, Behanna spent her first year fighting for her life in the hospital, but she wasn’t expected to live past her first birthday.

The condition has caused her face to lengthen, prompting the most vile comments online, with trolls comparing her to cartoon characters.

“Everyone is staring, but I don’t pay them any attention. Instead of trying to escape the obvious, I choose to educate others about my condition.”says.

After nearly three decades, Behanna uses every second of her life to support others. It has gone viral on TikTokwhere she has 757,400 followers and shares videos where she answers questions, takes requests and sings her heart out.

Unfortunately, in the comments there are also many people who make fun of her for her appearance but also for her voice. But she notices that most people in real life treat her “like everyone else”.

“I don’t remember being bullied as much as a kid and it’s honestly more intense on TikTok now that I’m an adult. But I can manage it,” he says.

Even offline, however, she faces difficulties in her daily life. She has been on two medications since the age of 4 and credits them with helping her have an “amazing” quality of life, which has lasted far longer than doctors expected.

“Without them, I’m dead,” she told NeedToKnow.Online. “Without the drugs I can’t move and I can hardly breathe”.

Behanna added that she spends the first 30 minutes of every day trying to muster the strength to get out of bed and has to teach herself how to walk every day. He uses a wheelchair for the long distances. “Every day is different, but he’s used to it.”

Behanna does not hide from the world, although she likes to stay at home. She feels grateful for every second of her life. “I’ve embraced the fact that I’m different and I love showing people that it’s OK to be different. Either way, I hope to live a long, healthy and happy life and continue to inspire others.”