Vulvodynia and pudendal neuropathy in the essential levels of assistance of the National Health System. The bill to have these diseases recognized was filed with the Chamber of Deputies and the Senate of the Republic. The request for greater protection came precisely from patients, who suffer what they call “voiceless pains”: the proposal is the result of a “bottom-up” work carried out by the Vulvodynia and Pudendal Neuropathy Committee (made up of five associations that deal with these two syndromes in Italy), which listened to doctors, patients and their families.
The support of the parliamentary groups was transversal: the proposal was supported by the Democratic Party, Movimento 5 Stelle, Forza Italia, Italia Viva, Lega Nord, Coraggio Italia, + Europa.
«Vulvodynia and pudendal neuropathy are far from rare diseases in that affect one in seven women. Despite the very high diffusion, they are underestimated pathologies by many doctors and unrecognized by society and, consequently, still poorly protected by the state ”, explained Giuditta Pini (PD), first signatory to the Chamber, and Giuseppe Pisani (M5S), first signatory to the Senate. “For this reason there is still a lot to do in order to eliminate the stigma and inequalities on gender diseases, which afflict above all the female population, favoring their prevention, diagnosis and timely treatment”.
The content of the bill
What does the proposal include? In addition to the recognition of vulvodynia and pudendal neuropathy in moles essential levels of care such as chronic and disabling diseases, the identification of regional public reference centers for the correct treatment of pelvic pain, the exemption from participation in public expenditure for related health services. And again the establishment of a national commission aimed at issuing guidelines for the Diagnostic Therapeutic Assistance Pathways, the establishment of a specific national fund and the establishment of a national register for data collection, the promotion of specific medical training. on the topic. Not only that: the forecast of funding for research supportfacilitated access to teleworking and smart working for male and female workers e an increase in permissions for illness in relation to the severity of the pathology and facilitated access to distance learning for female students. Awareness-raising, information and primary prevention activities will be promoted in schools and will be set up a national day for vulvodynia and pudendal neuropathy.
“What we have achieved is a very important result for us,” explains the Committee. “We know, however, that this is only the beginning and that we will still have to struggle to see this law scheduled as soon as possible. Currently there is still a lack of adequate assistance from the State and the National Health Service for the recognition and adequate treatment of these diseases; due to the shortage of trained specialists in public facilities and the diagnostic delays caused by misdiagnosis or from invalidation of symptomsoften attributed to psychosomatic disorders, access to valid and effective treatments is precluded in many cases. This significantly affects the quality of life of these patients and it is therefore urgent that the State and the National Health Service recognize the problem and take charge of it: these diseases exist, they can and must be treated, they are not in our heads “.
Other stories of Vanity Fair that might interest you:
Vulvodynia, what it is and how it is treated the disease that Giorgia Soleri also suffers from
Pelvic floor: do you know it? Find out here if you keep it trained
Urinary incontinence, the importance of breaking the taboo of an underestimated disorder
Source: Vanity Fair
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