Sadness for the millions of fans of a 15-year-old YouTuber who died while battling the rare disease of “Benjamin Button”. Adalia Rose Williams, who has always been open with her fans about what life is like with a rare genetic disease, finally left this world at the age of 15.
Williams, who was diagnosed as a baby with the syndrome advance Hutchinson-Gilford – also known as “Benjamin Button” – died Wednesday afternoon, according to her Instagram page.
“She came into this world quietly and left quietly, but her life was far from it,” wrote the heartbreaking post, which has received more than 714,000 reactions, 138,000 comments and 93,000 notifications. “It doesn’t hurt anymore and now he dances to all the music he loves.”
Her family thanked the little fans of the little one who “love and support” her and asked everyone to respect the family secret as they mourn her loss.
Many fans left comments of love and support under the post, hoping that “he rests in peace”.
“I loved her so much,” said a follower from India. “It has been an inspiration to many and has touched millions of lives.”
“He taught us how to live without restrictions,” said another.
Her YouTube channel has 2.9 million subscribers
Williams, was one of the most well-known YouTuber in the world who posted on other social media platforms. Recording her life, she shed light on the reality of everyday life in the world while facing the progression, a chronic, progressive disease with which she was diagnosed at the age of just 3 months.
The syndrome is currently untreatable and causes rapid aging, accompanied by growth retardation and hair loss. According to the Progeria Research Foundation, about 400 children around the world are currently living with the disease.
The teen from Texas, who exceeded the average life expectancy for people with the condition, which is 13 years old, started blogging in 2012. Uploading her videos on YouTube, she finally gathered 2.9 million subscribers.
She did not just publish updates on her health – she did makeup, dance and sketching lessons with other members of her family.
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